What type of Vitiligo do you have?

Mixed

Which areas on you are lacking pigmentation?

Face trunk , joints

When did you start noticing symptoms of Vitiligo?

V young didn’t remember

When were you diagnosed with Vitiligo? How did your diagnosis help?

3 years old

Does anybody else in your family have vitiligo?

Yes

On a scale of 1 to 10, how much impact does Vitiligo have on your life?

6

How does Vitiligo affect your day-to-day life?

It dies it makes me conscious of it and just this cosiousness effect me that why am i still getting effecting by it

Do you proudly tell people that you have Vitiligo or is that something that you hope would remain more of a secret?

I hope it remains more of a secret

How quickly does it spread for you?

Slowly gradually then stop disappear come back its just a hide and seek game for me

(For people of color) How do you think being a person of color affects your experience with Vitiligo?

Its more visible specially if you get tanned

What was it like growing up with Vitiligo?

I was a v headstrong child but deep inside getting effecting by it never say it out loud no one around me can ever tell that vitihas en effect on me

Have you experienced any sort of stigma for having Vitiligo? Did that take a toll on you? How did/do you deal with it?

Yeah it does even though im very attractive from childhood people or your friends would never consider you as someone who embodies beauty more like they don’t look at you in that sense when i start wearing hijab and i met people outside my close circle i start getting alot of compliment that your v beautiful v attractive which i never get from my close circle and i do wear hijab around them from time to time which makes me realize that for some societies having a vitiligo somehow make you an exception when it cones to being beautiful or considered as one

Have you had any treatment? How effective are they?

Yeah i did have treatments all o lf them were effective

What are your thoughts on skin bleaching?

No I don’t like changing my skin color even more but if it works for anyone then why not I’m just talking for myself

Have you lost opportunities due to having Vitiligo?

No never if ever then only bcz of my hesitation

What is your general outlook on your condition?

If i would accepted it early on even more then i did then it would have been more easier for me .

Does Vitiligo affect your mental health?

I don’t like hiding it but im an hijabi I do hijab but the vitiligo spot on my face got hidden bcz of my hijab then when people compliment me it makes me question my appearance but the more disturbing thing is it makes me question my intentions for wearing hijab and i have a fear that people will question it too that im covering myself to hide this insecurity which is wrong I do Hijab because i like to do it its an identity for me i need to work on this.

How does Vitiligo affect your career?

So far it has no effect

How does Vitiligo affect your love life?

I don’t approach people and don’t let them approach me im an attractive person but just this idea that when they will come to know that i have vitiligo their attitude will change have stopped me som many times

How does Vitiligo affect other aspects of your life?

Im pretty much hood at handling it by now

What did your parents do right and wrong, in raising a child with Vitiligo?

They did everything perfect whoever i am today is because of them and all the problems that im facing now is only because of the few advices that I didn’t follow they were always right they were so good so supportive they make so headstrong i was never a person who can get bullied i never thought of myself as a person with anything different all the years when i was with them i was dealing with it the best .

What are misconceptions about Vitiligo?

I don’t know

What do you find is the biggest challenge of living with Vitiligo?

Its v unpredictable

What is the worst experience you had regarding Vitiligo?

I don’t want to recall it

Are there things you like about having Vitiligo?

Yeah it makes me humble

What are things to NOT say or do to people with Vitiligo?

Please don’t stare at them i got stare alot sometimes people cones to me and said that you’re v beautiful when im wearing hijab and people stare at me too when im not wearing hijab and my vitiligo is exposed its sad that with hijab I assume that people are appreciating my looks but without hijab the first thought is that they are looking at my vitiligo

How often do you meet other people with Vitiligo in real life?

Very rarely

How do you feel about how Vitiligo is portrayed in media? What are some of your favorite pieces of media with authentic representation?

I don’t know

Who are your favorite celebrities or characters with Vitiligo?

I don’t know any

What would you like to say to people with Vitiligo?

I hope you live yourself accept yourseand if you want to heal yourself i hope you find the best treatment that works fir you

What would you like to say to parents of people with Vitiligo?

Love them treat them normally and give them edge even though you’re fully supporting them they still have their inner demons that only they can deal with

How do you wish our society would perceive and treat people with Vitiligo?

I hope they will treat them like a mormal person just like they woukd not stare at a person with face full of freckles and they will realuze its just a normal skin that loses its color just like a tan skin that gain some

What would you like people to know about Vitiligo?

Its a mormal skin dont feel averted from it

Tell your story, opinions, experiences.

I did don’t want to dwell into it anymore thankyou