I’m starting a Pokémon YouTube channel called EvilGoose, gonna make content after my exams end
What is albinism to you?
A condition that I have had all my life, just a part of life for me
Do you have a parent with albinism?
No
What was the moment you realized you looked different to other people?
I was 7 years old, I started getting bullied for my looks
How do you feel about the word “albino”?
Offensive
Do you consider albinism a disability?
Yes
Do people judge you because of the way you look?
Not that I am aware of
Do you have vision problems?
Yes
What are things that are harder to do because you have albinism?
Read, see long distance, be out in the sun
What are your thoughts on representation of albinism in media, e.t.c?
Very scarce and if it is there it tends to be negative
What effects does albinism have on your life?
Have to get larger print books and sheets at school
How does albinism affect your love life?
I’ve never really tried to get into a relationship yet, I might try to after my GCSEs though
How does albinism affect your career?
Still in school
Have you lost opportunities due to albinism?
Not that I am aware of
How common is it for you meeting other people with albinism?
Very rare, have met some before though
What stereotypes about albinism do you not relate to?
“The villain” and living in a basement
What stereotypes about albinism do you relate to?
Quite sensitive
How did you start to embrace albinism?
My parents helped me come to terms with the fact that I will always be this way
Have you been able to fully embrace albinism?
Yes
Do you sometimes wish you didn’t have albinism?
I am proud of my condition, although sometimes when I am trying to read something I can get frustrated
What are cons of having albinism?
Vision problems, sensitive skin, sensitive hearing
What are pros of having albinism?
People think the hair looks cool, government benefits
What are the biggest misconceptions about people with albinism?
I think that some people think I have a mental disability that comes with albinism? Could just be me though
What are facts about albinism?
It is a genetic condition that causes a lack of melanin. Which leads to white hair, pale skin and visual impairment
What are things to NOT say to people with albinism?
That they need to be cured
Say something to people who have albinism.
Don’t be ashamed of your condition, it ain’t going away so you may as well embrace it
Say something to people who don’t have albinism.
Treat us the same as everyone else, no special treatment
Who is your favorite celebrity/character with albinism?
Don’t know very many to be honest
Do you love or hate having albinism?
Indifferent to it, it has pros and cons
Share your experience as a person with albinism.
I wouldn’t be able to say as I have had it all my life
(Someone sees you in real life, it’s obvious that you are, but they are asking ): “Are you an albino?” Reply savagely.
“Yeah”